Privacy Notice - NHS England OpenSAFELY

 

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NHS England has been directed by the government to establish and opearte the OpenSAFELY COVID-19 Service and the OpenSAFELY Data Analytics Service. These services provide a secure environment that supports research, clinical audit, service evaluation and health surveillance for Covid-19 and other purposes.

Each GP practice remains the controller of its own GP patient data but is required to let approved users run queries on pseudonymised patient data. This means identifiers are removed and replaced with a pseudonym.

Only approved users are allowed to run these queries, and they will not be able to access information that directly or indirectly identifies individuals.

Patients who do not wish for their data to be used as part of this process can register a type 1 opt out with their GP. Here you can find additional information about OpenSAFELY - www.opensafely.org/about/ 

Type 1 opt-out details can be found here National Data Opt-Out

1) Controller contact details

Lee Road Surgery

20 Lee Road

London

SE3 9RT
2) Data Protection Officer contact details

John Eni-Uwubame

South East London Integrated Care System
160 Tooley Street
London
SE1 2TZ
Email: gpdpo@selondonics.nhs.uk
Telephone: 02081761198
3) Purpose of the processing

The creation and maintenance of a pseudonymised GP dataset (only coded patient data), held within Optum (Emis Web), made availbale to NHS England approved studies via the OpenSAFELY platform.

The GP data remains under practice control and is retained for the duration of the data provision notice, with only study-specific cohorts and results transferring to NHS Engalnd control.
4) Lawful basis for processing

The legal basis will be 
Article 6(1)(c) “processing is necessary for compliance with a legal obligation to which the controller is subject.” 
5) Recipient or categories of recipients of the shared data

The data will be shared with NHS Digital according to directions which can be found at Data collection and curation - NHS Digital.
6) Rights to object 

You have the right to object to some or all of the information being shared with NHS Digital. Contact the Controller or the practice.
7) Right to access and correct

You have the right to access the data that is being shared and have any inaccuracies corrected. There is no right to have accurate medical records deleted except when ordered by a court of Law.
8) Retention period  The data will be retained for active use during the processing and thereafter according to NHS Policies and the law.
9)  Right to Complain. 

You have the right to complain to the Information Commissioner’s Office, you can use this link https://ico.org.uk/make-a-complaint/data-protection-complaints/

or calling their helpline Tel: 0303 123 1113 (local rate) or 01625 545 745 (national rate) 
There are National Offices for Scotland, Northern Ireland and Wales, (see ICO website).