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Privacy Notice - Data Sharing Opt-Outs
Gathered here are all the details about the data sharing that you can opt-out or specify how much we share.
Summary Records
The NHS summary care record (SCR) is an electronic summary of key clinical information about each patient registered with the NHS in England. It is automatically created on registration with a GP practice in England and uses information recorded in the GP clinical system.
The GP record is known as the ‘source record’. Information is updated every time a relevant change is recorded in the patient’s GP medical record.
The information held in a summary care record gives registered and regulated healthcare professionals, away from the patient’s usual GP practice, access to information to provide safer care, reduce the risk of prescribing errors, and improve the patient experience.
Putting the right information in the hands of doctors, nurses, and other care professionals at the right time saves lives and improves outcomes.
There are two types of summary care record:
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core SCR
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SCR additional information (SCRai, also called enriched SCR)
SCR content is limited to information held in GP systems and contains basic information about allergies and medications and any reactions a patient may have had to medication in the past. The SCRai may have relevant content recorded by other organisations and shared with the GP practice and can include information about significant medical history (past and present), reasons for medications, care plan information and immunisations.
You can specify which level or dissent to a Summary Care Care Record by completing the consent form here
London Care Record
The LCR enables health and care staff to have one secure view of a person’s relevant heath and care information. Even if a person’s details are held in other London care organisations, information can still be accessed safely and securely. For example, if someone from Peckham (South East London) attends A&E at Chelsea and Westminster Hospital (North West London), staff involved can access the information they need to treat that person quickly and safely. This could include information on allergies, current medications, or existing long-term conditions.
Please note – If you previously requested your information not be shared in Connect Care this is still honoured in London Care Record. If you prefer your health and care information not to be shared in the London Care Record, please click here to inform your health and care professional.
NHS Data Opt-Out
Your health records contain a type of data called confidential patient information. This data can be used to help with research and planning.
You can choose to stop your confidential patient information being used for research and planning. You can also make a choice for someone else like your children under the age of 13.
Your choice will only apply to the health and care system in England. This does not apply to health or care services accessed in Scotland, Wales or Northern Ireland.
COVID-19 update
To help the NHS respond to COVID-19, your information may be used for COVID-19 research purposes even if you have chosen not to share it. Any information used will be shared appropriately and lawfully.
What is confidential patient information
Confidential patient information is when 2 types of information from your health records are joined together.
The 2 types of information are:
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something that can identify you
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something about your health care or treatment
For example, your name joined with what medicine you take.
Identifiable information on its own is used by health and care services to contact patients and this is not confidential patient information.
How we use your confidential patient information
Your individual care
Health and care staff may use your confidential patient information to help with your treatment and care. For example, when you visit your GP they may look at your records for important information about your health.
Research and planning
Confidential patient information might also be used to:
- plan and improve health and care services
- research and develop cures for serious illnesses
Your choice
You can stop your confidential patient information being used for research and planning. Find out how to make your choice.
If you're happy with your confidential patient information being used for research and planning you do not need to do anything.
Any choice you make will not impact your individual care.