Privacy Notice - LeDer Programme 

 

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Learning from Lives and Deaths – People with a learning disability and autistic people, or LeDeR (formerly known as the Learning from Deaths Review Programme) started in April 2017. 

LeDeR is a service improvement programme which aims to improve care, reduce health inequalities, and prevent premature mortality of people with a learning disability and autistic people by reviewing information about the health and social care people received.

LeDeR needs to know the personal details of people with a learning disability who have died so that their deaths can be reviewed. 

LeDeR requires information about the closest living relative, family member or close friend (name, contact details, relationship), in order to invite them to contribute their views to the review.

We may share information that we hold that may be relevant as outlined above. 

1) Controller contact details

Lee Road Surgery

20 Lee Road

London

SE3 9RT
2) Data Protection Officer contact details

John Eni-Uwubame

South East London Integrated Care System
160 Tooley Street
London
SE1 2TZ
Email: gpdpo@selondonics.nhs.uk
Telephone: 02081761198
3) Purpose of the processing

The LeDer Programme is commissioned by NHS England instructed to carry out the reviews of deaths of individuals with learning disabilities and autism.

The data is processed as part to of the reviews which informs the improvement the quality and standard of care provided to individuals with learning disabilities and autism.

For information about the LeDeR programme: LeDeR - Home
 
4) Lawful basis for processing

The lawful justifications for the processing and possible sharing of this data as part of LeDer Reviews are:

Use of the data for the purposes detailed in this notice is approved under Section 251 of the NHS Act 2006.

Article 6(1)(c) “the processing is necessary for compliance with any legal obligation to which the controller is subject”
5) Recipient or categories of recipients of the shared data T

The data will be shared with other health and care organisations at which patients have received care, including SEL ICB who undertake LeDeR reviews within SEL. 

Information on the SEL-wide LeDeR programme can be found here: Privacy policy - South East London ICS (selondonics.org)
6) Rights to object 

You have the right under Article 21 of the UK GDPR to object to your personal information being processed. Please contact the ICB if you wish to object to the processing of your data. You should be aware that this is a right to raise an objection which is not the same as having an absolute right to have your wishes granted in every circumstance.
7) Right to access and correct

You have the right to access any identifiable personal data that is being processed or shared and to have any inaccuracies corrected.
8) Retention period  The data will be retained for the period as specified in the national records retention schedule.
 
9)  Right to Complain. 

You have the right to complain to the Information Commissioner’s Office, you can use this link https://ico.org.uk/make-a-complaint/data-protection-complaints/

or calling their helpline Tel: 0303 123 1113 (local rate) or 01625 545 745 (national rate) 
There are National Offices for Scotland, Northern Ireland and Wales, (see ICO website).